Project Overview
The Moebius Syndrome Foundation is celebrating our 30th anniversary this year! To celebrate, we would like to create a virtual talent show featuring talent videos submitted by our members in advance, as well as videos discussing favorite moments of our history, and why it's important to continue to support our work from Board members and staff.
We would like to have a video created that has seamless integration of the submitted videos, maybe some great introduction and closing music, and a professional overall look. We did something similar to this at a virtual talent show in 2020, and the entire video lasted about 30 minutes. I would expect this one to be between 30-45 minutes in length, depending on our members' interest. We would preschedule the finished video to launch on our public Facebook page, as well as Vimeo and possibly YouTube platforms.
Imagine being born without the ability to smile, frown, blink, move your eyes from side-to-side, or show any expression. In a world that puts so much emphasis on beauty and the ability to smile, this could be an enormous disadvantage. This is the reality of people born with a very rare neurological condition called Moebius syndrome. The Moebius Syndrome Foundation is a national 501-c-3 nonprofit dedicated to supporting individuals and their families living with Moebius syndrome. We offer support by providing educational resources, advocating for research, hosting national conferences and smaller regional events, and virtual events to provide crucial social opportunities, and partnering with other craniofacial differences groups to join our voices in a cry for change. People with facial differences often experience extreme bullying as children and adults, face discrimination in employment, and suffer mental health challenges due to years of self-esteem issues. One of the ways the Moebius Syndrome Foundation advocates for our members is by showing their beauty and talents. We all know that beauty is only skin deep, and we ask the world to look beyond face value.
To celebrate the Moebius Syndrome Foundation's 30th anniversary this year, we would like to host a virtual talent show with a fundraising component and show the beauty of our community. We need a skilled creator to put together a professional-looking video compiled of pre-submitted talent videos, as well as messages from our Board and staff members.
So far, we have made no preparations. However, we are going to start a call for talent video submissions this month, with a deadline of submitting everything by June 1, 2024. We would like to premier our video on July 25, 2024, and hope that this will give a creator enough time to put a video together.
Nonprofit Overview
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, to promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research that advances the diagnosis and treatment of Moebius syndrome and its associated conditions.